OpenPlacement Community > OpenPlacement Blog > Long-Term Caregivers (INFOGRAPHIC)

Long-Term Caregivers (INFOGRAPHIC) Alyssa Chan

January 24th, 2014

Given tremendous feedback and response from our recent Infographic series we decided to put out one more this week about long-term caregivers.  We have found that a picture is truly worth a thousand words and tells a much needed story – especially when it comes to senior care.

The average volunteered hours for an unpaid caregiver is equivalent to working a 20 hour a week part-time job for five years. These long-term caregivers are dedicating their time to help care for a friend, family member or even an acquaintance. We decided to take a closer look at Alzheimer’s disease and other forms of dementia caregivers as well. These long-term caregivers are somewhat similar to the help provided by caregivers of people with other diseases. However, dementia caregivers tend to provide more extensive assistance. The unpaid caregivers are primarily immediate family members, but they also may be other relatives and friends. We have simplified the facts below in an infographic of our own. Please leave any comments, suggestions, and/or advice when it comes to long-term caregivers for our readers in the comments section below.  Share this infographic if you found it resourceful! Make sure to check out and share our previous infographics on Dementia in the United States and the Cost of Senior Living as well.

INFOGRAPHIC_LT_Caregivers

Long-Term Caregivers – Key Facts:

  • The majority of long-term caregivers are women (66%). Men are less likely to be long-term caregivers at 34%.
  • 83% are family member long-term caregivers.
  • 17% of caregivers feel their health in general has gotten worse as a result of their caregiving responsibilities.
  • 22% are between the ages of 45-64 years old. Other statistics show 16% are 65+, 15% are 30-44 years old, and 13% are 18-29 years old.
  • 21% of the household annual income is less than $36,000. Other statistics show 16% with an annual income between $36,000-$89,999, and 15% with an annual income of $90,000.
  • 68% have made work accommodations such as taking time off, coming in or leaving work early, changing jobs, quitting altogether, etc.
  • 20% have their high school diploma or less. Other statistics show 18% have technical or vocational training or some college degree, 16% have post-graduate degrees or are working, and 15% are college graduates.
  • Duties of a long-term caregiver may include:
    • Assistance with Activities of Daily Living (ADLs), such as bathing, dressing, grooming, eating, toileting, moving, etc.
    • Buying groceries, preparing meals, and cleaning up.
    • Help with household chores and run errands.
    • Give medical needs and reminders.
    • Provide companionship.
    • Alzheimer’s Disease and other forms of Dementia Caregivers:
      • 17.5 billion hours of unpaid care from Americans to people with Alzheimer’s disease and other dementia’s as of 2012.
      • 80% of care provided in the community is provided by unpaid caregivers
      • More than 15 million Americans provide unpaid care for people with Alzheimer’s disease and other dementia’s.
      • 1.74 billion hours of unpaid care from Californians to people with Alzheimer’s disease and other dementia’s as of 2012. This is the highest number of unpaid hours in all 50 states. See other states’ statistics via the Alzheimer’s Association’s fact sheet.
      • Caregivers of people with Alzheimer’s and other dementia’s are more in demand of assistance than caregivers of other older people who provide help with ADLs.
        • More than half of dementia caregivers report providing help with getting in and out of bed, and about one-third of family caregivers provide help to their care recipients with getting to and from the toilet, bathing, managing incontinence and feeding. See exact percentages in the infographic above.
  • Notice any celebrity long-term caregivers? Here are a few celebrities that have been a caregiver to a family member at one point in their lives. See other celebrity caregivers here.
    • Patrick Dempsey: Both Patrick and his sister were both an active part in their mother’s fight with ovarian cancer. Later the Patrick Dempsey Center for Cancer Hope and Healing was created to help other families get support.
    • Hillary Clinton: Hilary has been a supportive caregiver for years to her mother. “Her mother’s illness, a topic that was kept private from the invasive world of 24/7 news media, made Clinton one of those caregivers she had championed so often in Congress.” -Alzheimer’s Association, blog post.
    • Victor Garber: Victor Garber’s parents were both diagnosed with Alzheimer’s disease. He has stated, “Living at home with an Alzheimer’s patient, it’s beyond stressful and it takes its toll on everyone.”
    • Nancy Reagan: Nancy Reagan has had first hand experience in caregiving for her husband. She has previously stated, “We have learned, as too many other families have learned, of the terrible pain and loneliness that must be endured as each day brings another reminder of this very long goodbye.”

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